Gardasil Vaccine Victim Support

Since the Gardasil vaccine was introduced I have had several people contact me to report ill health since the jabs and just recently it has come to my attention that people affected by this vaccine would like to make contact with each other for emotional support. For this reason I will be setting up a yahoo group for Gardasil vaccine victims.

If you would like to be put in touch with someone who is experiencing side-effects, please email or write to me at the address on the contact us page with your details and we will pass them onto another sufferer if we are contacted by one.

Watch this space for details of the yahoo group.

If you have been damaged by this vaccine, you can also send your story in for inclusion on this page so that we can log side-effects that are happening.

Medical Help Urgently Needed For Jenny - Paralysed After Gardasil shot

URGENT APPEAL FOR MEDICAL GUIDANCE ON PERPLEXING NEUROLOGICAL CASE OF JENNY
Unusually Rapid decline from apparent lower motor neuron disease in a 14 year old girl (Inset followed HPV vaccine in March 2007). Jenny is now Quadriplegic-- and in danger of further decline.

For access to detailed medical records, please request access code from JenTet.com Administrator ý[admin@jentet.com]ý and correspondence on diagnostic and treatment ideas to tetlock@haas.berkeley.edu

Many world-class MDs have been consulted and many treatments tried

Immunoglobulin, prednisone (oral and pulse), plasma pheresis, and Cytoxan, have been tried based on the assumption of an autoimmune process, with no apparent effect.

A mitochondrial cocktail has been tried based on the assumption of a mitochondrial disorder.

Lithium and Rilutek have been tried based on the assumption of a neurodegenerative disease.

Jenny may have had certain pre-existing autoimmune and/or genetic vulnerabilities that rendered her susceptible to a catastrophic reaction to the HPV vaccine. These include an autoimmune skin disease (pityriasis lichenoides), a maternal grandmother who died of progressive supranuclear policy, and a maternal cousin with severe autism/seizures. Jenny also has only a single copy of the SMN-2 gene (but otherwise does not satisfy the preconditions for SMA).

If you are a doctor or alternative health care provider and you think you can help, please email the address in the above paragraphs.

Update on Jenny

Good news first: Jenny is home from the hospital and seems to be stable for the moment.

Bad news: Jenny is even weaker than before, and no longer is able to use her left hand in a meaningful way. This is especially disappointing because she just received a new, more powerful motorized wheelchair with controls that had been tailored for her to use with her left hand. It looks as if those controls will need to be reconfigured so that someone else can “drive” the chair for her from behind.

But, although her body seems to get weaker each day, Jenny’s spirit remains strong – stronger than any of us can comprehend, as is clear from a conversation she had with her father on Sunday. In his words:

"[Jenny] awed me with her compassion today: she could see I was close to crying and she told me to come over and hug her – and she then looked me right in the eyes and said matter-of-factly: 'don't worry – it will soon be all over.' I felt simultaneously struck with grief but also proud of her courage. I will remember that moment until the day I die (indeed, especially on the day I die)."

"I burst into tears and declared we were doing all we could to stop the disease – she smiled knowingly and said: 'let's just try to have some fun.'

We all hope that Jenny is wrong in predicting “it will soon be all over,” but we fear that she is all too accurate. That is why we (her family and friends) have embarked on a crusade to fulfill her wish to just have some fun. Keep watching this blog site for upcoming stories on “fun with Jenny”!

Our new focus on fun doesn’t mean we’ve stopped doing all we can to cure Jenny’s illness – an effort that includes, most importantly, continuing to search for other cases that might be comparable to Jenny’s. Please read the sidebar in blue (“Am I a Comparable?”) and contact us at jenjensfamily@gmail.com if you know of anyone who might fit the description. And, get the word out to any doctors you know who might have come across cases like Jenny’s in their practice. Finding comparables – fast – could hold the clue to saving this brave girl’s life. jenjensfamily@gmail.com